Zachary Root was born deaf. Cohlear implants gave this child the gift of sound.  However, the mother still felt something was still not right. After some time, the family learned their son was going to lose his vision.  Zachary was diagnosed with Usher Syndrome Type 1.  This disease takes your sight, hearing and balance. Currently, there is no cure. Zachary’s mom wants to change that by raising awareness and finding a cure. Go to to learn more.